Aim

The primary aim of the study was to explore the experience of ovarian cancer for women, partners and children. The intent of this presentation is to report one of the findings – alopecia – and the significant impact this has on the experience of Australian women with a primary diagnosis of ovarian cancer. 

Method

This research was informed by phenomenological philosophy.  Fifteen Australian women with a primary diagnosis of ovarian cancer contributed to this component of the study via digitally recorded unstructured interviews.  Data collection continued until themes became repetitive indicating that data saturation was reached.  The interviews were transcribed verbatim and analysed utilising van Manen’s (1990) method of data interpretation.

Findings

In this study, alopecia significantly affected the women’s embodied sense of self. It was described as the worst corporeal feature of the ovarian cancer experience – they were “devastated” by the loss of their hair.  A number of factors contributed to the overall distress caused by hair loss: altered body image; it was a reminder of their illness; it was a public statement about their private lives; and the practical issues associated with dealing with the loss.

Conclusions

Alopecia had a major impact upon the lives of women already battling with a diagnosis of ovarian cancer.   This presentation explores ways in which alopecia can be conceptualised for this group of women.  By enhancing understanding of the traumatic impact of alopecia, findings from this study may help health care workers provide appropriate care for women in relation to this aspect of their ovarian cancer experience.